Excerpts from 2007 Debate conference via edited google video
http://video.google.com/videoplay?docid=-9028885979921555185
Sandi Pniauskas
Tuesday, 7 October 2008
Wednesday, 1 October 2008
2008 Survivors' Debate CANO presentation
click on title above or cut and paste the link below for the Pdf file:
2008 CANO presentation Survivors' Debate: The Past Decade in Ovarian Cancer
http://groups.google.com/group/survivors-debate/files?&sort=rdate
2008 CANO presentation Survivors' Debate: The Past Decade in Ovarian Cancer
http://groups.google.com/group/survivors-debate/files?&sort=rdate
Friday, 26 September 2008
Carolyn Benivegna - passed away from ovarian cancer September 25th, 2008
Information for Services:
Saturday, October 4, 2008
11:00 AM
Eulogy & Mass
Holy Family Church
24505 Meadowbrook Road
(Between 10 Mile and Grand River)
Novi, MI 48375
(248) 349-8847
Saturday, October 4, 2008
1:00 PM/Immediately following Eulogy & Mass
Wake
Fox Run
Fireside Restaurant, Ascot Clubhouse
Follow the "Memorial Service Parking" signs. Park and take provided Fox Run
Shuttle.
41100 Fox Run Road
Novi, MI 48377
(248) 668-8600
Tax-deductible contribution in lieu of flowers:
Please make checks payable to
University of Michigan and note on the check
"Carolyn & Paul Benivegna Ovarian Cancer
Research Fund"
Mail contributions to Office of Development, UM
Comprehensive Cancer Center, 301 East Liberty, Suite 130, Ann Arbor MI
48105-2251.
Monday, 15 September 2008
September 15th, 2008: CANO conference presentation - Survivors' Debate: The Past Decade in Ovarian Cancer
Novel Prescriptives : presentation/abstract -
Survivors Debate: The Past Decade in Ovarian Cancer
Pamela J. West, RN(EC), NP-Adult, MSc, CON(C),
CHPCN(C)1, Sandi Pniauskas2, Carolyn Benivegna3 (*3 editors note: passed away from ovarian cancer Sept 2008).
1Rouge Valley Health System, Toronto, ON, Canada, 2No Institution
- patient, Whitby, ON, Canada, 3No Institution - patient,
Novi,, MI, USA.
Two fascinating and novel cancer survivor-led conferences
point the way to the future. As healthcare providers,
we may have missed an exceptional opportunity.
We need to get ‘on board’ and truly ‘walk-the-walk’
rather than merely espousing a concept of innovation
In the U.S. and Canada during 2007, four ovarian cancer survivors
coordinated and self-funded the first ever cancer debates.
Oncology nursing professionals were asked to participate
in supportive roles and to document the debate
proceedings. The debates were planned, co-ordinated and
delivered by ovarian cancer survivors who took them on the
road, presenting both in Michigan and Ontario.
Research data from the past decade were presented from a pro and
con perspective and included awareness and communication; early detection;
survival; access to care and genetics.
Marketing the programs garnered significant controversy,
but successful results were proof positive that the vision of
these cancer patient survivors was brought to fruition.
In preparation for the debates, the survivors conducted a survey,
in part to high-light the value patients place on relationships
with their physicians.
If, as healthcare providers we
feared criticism or exclusion, there was little cause for concern.
This presentation features the results of the e-survey (n = 303),
the essence of the debates (including video footage) and evaluations
of the process. Health care professionals were impressed
by the patients’ knowledge, expertise and wonderful ability to
‘relay the message.’ Survivors were anxious to learn more about
the role of advocacy and information sharing.
Survivors Debate: The Past Decade in Ovarian Cancer
Pamela J. West, RN(EC), NP-Adult, MSc, CON(C),
CHPCN(C)1, Sandi Pniauskas2, Carolyn Benivegna3 (*3 editors note: passed away from ovarian cancer Sept 2008).
1Rouge Valley Health System, Toronto, ON, Canada, 2No Institution
- patient, Whitby, ON, Canada, 3No Institution - patient,
Novi,, MI, USA.
Two fascinating and novel cancer survivor-led conferences
point the way to the future. As healthcare providers,
we may have missed an exceptional opportunity.
We need to get ‘on board’ and truly ‘walk-the-walk’
rather than merely espousing a concept of innovation
In the U.S. and Canada during 2007, four ovarian cancer survivors
coordinated and self-funded the first ever cancer debates.
Oncology nursing professionals were asked to participate
in supportive roles and to document the debate
proceedings. The debates were planned, co-ordinated and
delivered by ovarian cancer survivors who took them on the
road, presenting both in Michigan and Ontario.
Research data from the past decade were presented from a pro and
con perspective and included awareness and communication; early detection;
survival; access to care and genetics.
Marketing the programs garnered significant controversy,
but successful results were proof positive that the vision of
these cancer patient survivors was brought to fruition.
In preparation for the debates, the survivors conducted a survey,
in part to high-light the value patients place on relationships
with their physicians.
If, as healthcare providers we
feared criticism or exclusion, there was little cause for concern.
This presentation features the results of the e-survey (n = 303),
the essence of the debates (including video footage) and evaluations
of the process. Health care professionals were impressed
by the patients’ knowledge, expertise and wonderful ability to
‘relay the message.’ Survivors were anxious to learn more about
the role of advocacy and information sharing.
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